Wednesday, July 29, 2009

I am not the first and definitely won't be the last. My name is Sensational Mama and I have two Sensational Kids. Ok, one Sensational Kid and one terrific baby! Why am I so sensational? I am sensational because my first child has Sensory Processing Disorder. A book that changed my life---Sensational Kids by Lucy Jane Miller---calls these precious sensory children--and adults--who suffer from this condition "sensational." When Dr. Miller signed my copy of her book, she signed it to a "sensational" mama. And you know, I am pretty darn sensational. Not in that sense, but to learn, to laugh, to cry, to hold and to grow with my precious Big A as she, hmm, we learn more about SPD and how it impacts her life.

Little A just joined our family a few months back. I say she's a terrific kid because we don't know (yet) if she's a sensational child or not. It's too early to officially diagnose it, but there are things Little A does that Big A used to do at this stage and it makes me nervous. Why would I be nervous about Little A having SPD? Because of the tears, heartache and frankly the expense that we have incurred. Unfortunately our insurance doesn't view SPD as a "real" diagnosis, so they won't cover it any of her occupational therapy. And they won't cover her speech therapy either. Said she'll get speech WHEN SHE'S 3 in school, so they won't cover it now. Sure, let my child be a delayed talker AND behavioral issue child and a burden on the school system so insurance won't have to pay for it. Sure, that makes alot of sense. Don't get me started on insurance. We still haven't "paid for" Little A yet and even some of her claims and my delivery claims are being denied. Really, I can go on a tangent about insurance.

I have another blog. It's my "normal looking family" blog. Granted I can't speak for the other thousands of families that their kids have SPD, but I can say that with Big A's diagnosis, I have found myself in a parallel universe that although we live in the "real world" there is a whole other side of life, consisting of therapy, doctor's appointments, tests, etc, that most typical families never have to experience. Little A gave me another taste of that alter universe when she was born and went to the NICU and now with her torticollis dx.

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